Since the start of the Keto diet, Jade's strength has improved and she is now holding her head up for longer periods of time. The downside is that this week, she's having a lot of drop, absence and staring seizures, which may be due to teething. It's starting to wear on her and I'm praying she doesn't regress with the frequency. She was doing pretty well for a few months, so hopefully she'll weather this storm and get back on track soon. We began a Topamax wean a couple of weeks ago, but I don't think this is the problem. I am pretty tired of fighting this horrible monster inside her head!
On a good note, we got her wheelchair this week! Much easier to transport her now. We're also constructing her bedroom into a multi-sensory room and she's getting a lot of really neat things for Christmas to decorate it.
She's a real trooper! At this point, all I want for Christmas is to see her smile and hear her laugh. Anyone else in the same boat?