Monday, August 11, 2008

Whoa doggy!

Stryker, Stryker, Stryker. What can I say? She's more work than Jade right now! She has had a urinary infection since the day we got her, and she continues to pee EVERYWHERE in the house, even after antibiotic treatment and holistic treatment. I am soooo ready to call the breeder and ream her out, but I am being patient and hopeful that this will run it's course. I will give it a couple more weeks and if she needs to go back to the breeder, so be it. I can't have an incontinent dog for the next 10-15 years. My "luck" never seems to end! On a different note, she is a pretty intelligent pup. We have a trainer coming out this week to work on everything (but house training, of course), and I hope we get the results we are looking for. Stryker seems to think that our toes are her next meal, so that is issue #1 we will be addressing :)

As for Jade, I won't type what I want to type, because for those of you who understand "jinxing" things, you know what I mean. Suffice it to say, she is more comfortable being back home and back in her routine. 

We increased her calories and protein on the diet, so we will see if that brings any more positive changes. I'm keeping my fingers crossed for her. Maybe once the summertime heat relaxes some, she will be even more comfortable. Speaking of the little sugar-butt, it's 7:30 am and she's awake and ready to face the day!

Our house is coming along nicely, even with all of the heavy rain storms. They got all but two or three of the windows in on Friday and one sliding glass door. It's really shaping up and the wait is even more excruciating! We won't be moving in until after the New Year, so here's hoping the rest of this year goes fast!

The kids go back to school next Monday. Yay!! While I will miss their company during the day, it will be nice once again to have a little peace and quiet around here. It will hopefully give me more time to clean out the house and rid it of things we won't need to take with us and it will also give me time to plan for paint colors and decor upon moving in. 

I hope this posting finds everyone well. 

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Our peanut in a nutshell...

Hi everyone! Thanks for visiting my blog. My name is Jade and I am currently 8 years old. I have a big sister and a big brother whom I love very very much.

I have a very rare neurological disorder that isn't even named yet! It is a genetic mutation called CDKL5. It is considered a variant of Rett Syndrome and presently, I am only one of around 600 or so children in the world documented to have this mutation. Each child is unique in that his or her symptoms vary quite a bit. Unfortunately, I am one of those children who is affected much more severely than most of the kids.

Some of the problems I face include:

Reflux (in October 2006, I had surgery to have a Nissen Fundoplication done and to have a gastrostomy tube inserted for feedings). As of March 2012, I have a GJ tube for continuous feeds.

I am hypotonic - I have virtually no muscle tone and I find it difficult to even hold my head up on my own.

I have cortical vision impairment - my brain doesn't process the images it sees. Sometimes I see off to the side, sometimes, my vision is shuttered, sometimes I don't have any vision at all. The doctors and my Mom and Dad don't really know how or what I see because I can't tell them.

I cannot talk nor communicate with gestures.

I cannot walk, nor will I ever walk.

I grind my teeth. So much so, that some loosen during seizures.

I cannot grasp objects or use my hands for the simplest of tasks.

I cannot sit on my own. I can, however, sort of roll over from side to side.

I am choreoathetoid. I cannot control the jerky movements my arms and legs make.

I have life-threatening seizures every day. This is my greatest challenge.

So, now that you have gotten to know me, please feel free to take a stroll around my blog. Some of it you read may seem depressing, horrible, unfathomable, and downright crazy. But, this is my life.

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