We also talked about the excessive amount of mucous she has coming out of her g-tube. He surmised it was allergy related, but I'm stumped as to why it happens all year round. If the probiotic doesn't help clear things up, then he wants her to try Cingulair. We'll see. Last thing I want to do is add another drug to her increasing medication list, but if it helps, then great. I am almost positive that the excess mucous is causing a lot of her seizure activity. It seems to clog her g-tube, most likely causing discomfort or reflux. For all I know, these "seizures" could be reflux! Whatever they are, they are happening too much for my liking and they are wearing her out. She's even been seizing during the night, which hasn't happened in a while.
The stomach virus she caught seems to be gone, so now we are back to a bit of constipation. I lowered her diet ratio while she was sick, hoping the lower amount of oil would help alleviate the mucous and tummy discomfort. I am loathe to put her back at the high level she was on before, so I hope this ratio works out. She has an appointment in February with the Keto staff and her neuro. I plan on talking to them about potentially lowering the diet more. At this point, I would be almost willing to take her off of it. I would love for her to experiment with flavors in her mouth and not worry about meds with too many carbs. On the flip side, I need to investigate a more natural approach to her diet because I am pretty confident that gut issues are the cause of a lot of her troubles. I know my gut wreaks havoc on my system, so why wouldn't it be the source of her discomfort?
Oh yeah! CONGRATULATIONS FLORIDA GATORS for winning the National Championship AGAIN!! GO GATORS!!! It can't hurt that she gets her care at this school now, does it?? ;)
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